Voices from Chernobyl

PART TWO

THE LAND OF THE LIVING

MONOLOGUE ABOUT OLD PROPHECIES

My little daughter—she’s different. She’s not like the others. She’s going to grow up and ask me: “Why aren’t I like the others?”

When she was born, she wasn’t a baby, she was a little sack, sewed up everywhere, not a single opening, just the eyes. The medical card says: “Girl, born with multiple complex pathologies: aplasia of the anus, aplasia of the vagina, aplasia of the left kidney.” That’s how it sounds in medical talk, but more simply: no pee-pee, no butt, one kidney. On the second day I watched her get operated on, on the second day of her life. She opened her eyes and smiled, and I thought that she was about to start crying. But, God, she smiled!

The ones like her don’t live, they die right away. But she didn’t die, because I loved her.

In four years she’s had four operations. She’s the only child in Belarus to have survived being born with such complex pathologies. I love her so much. [Stops.] I won’t be able to give birth again. I wouldn’t dare. I came back from the maternity ward, my husband would start kissing me at night, I would lie there and tremble: we can’t, it’s a sin, I’m scared. I heard the doctors talking: “That girl wasn’t born in a shirt, she was born in a suit of armor. If we showed it on television not a single mother would give birth.” That was about our daughter. How are we supposed to love each other after that?

I went to church and told the minister. He said I needed to pray for my sins. But no one in my family has ever killed anyone. What am I guilty of? First they wanted to evacuate our village, and then they crossed it off their lists—the government didn’t have enough money. And right around then I fell in love. I got married. I didn’t know that we weren’t allowed to love here. Many years ago, my grandmother read in the Bible that there will be a time when everything is thriving, everything blossoming and fruitful, and there will be many fish in the rivers and animals in the forest, but man won’t be able to use any of it. And he won’t be able to propagate himself in his likeness, to continue his line. I listened to the old prophecies like they were scary fairy tales. I didn’t believe them.

Tell everyone about my daughter. Write it down. She’s four years old and she can sing, dance, she knows poetry by heart. Her mental development is normal, she isn’t any different from the other kids, only her games are different. She doesn’t play “store,” or “school”—she plays “hospital.” She gives her dolls shots, takes their temperature, puts them on IV. If a doll dies, she covers it with a white sheet. We’ve been living in the hospital with her for four years, we can’t leave her there alone, and she doesn’t even know that you’re supposed to live at home. When we go home for a month or two, she asks me, “When are we going back to the hospital?” That’s where her friends are, that’s where they’re growing up.

They made an anus for her. And they’re forming a vagina. After the last operation her urinary functioning completely broke down, and they were unable to insert a catheter—they’ll need more operations for that. But from here on out they’ve advised us to seek medical help abroad. Where are we going to get tens of thousands of dollars if my husband makes 120 dollars a month? One professor told us quietly: “With her pathologies, your child is of great interest to science. You should write to hospitals in other countries. They should be interested.” So I write. [Tries not to cry.] I write that every half hour we have to squeeze out her urine manually, it comes out through artificial openings in the area of her vagina. Where else is there a child in the world who has to have her urine squeezed out of her every half hour? And how much longer can it go on? No one knows the effect of small doses of radiation on the organism of a child. Take my girl, even if it’s to experiment. I don’t want her to die. I’m all right with her becoming a lab frog, a lab rabbit, just as long as she lives. [Cries.] I’ve written dozens of letters. Oh, God!

She doesn’t understand yet, but someday she’ll ask us: why isn’t she like everyone else? Why can’t she love a man? Why can’t she have babies? Why won’t what happens to butterflies ever happen to her? What happens to birds? To everyone but her? I wanted—I should have been able to prove—so that—I wanted to get papers—so that she’d know—when she grew up—it wasn’t our fault, my husband and I, it wasn’t our love that was at fault. [Tries again not to cry.] I fought for four years—with the doctors, the bureaucrats—I knocked on the doors of important people. It took me four years to finally get a paper from the doctors that confirmed the connection between ionized radiation (in small doses) and her terrible condition. They refused me for four years, they kept telling me: “Your child is a victim of a congenital handicap.” What congenital handicap? She’s a victim of Chernobyl! I studied my family tree—nothing like this has ever happened in our family. Everyone lived until they were eighty or ninety. My grandfather lived until he was 94. The doctors said: “We have instructions. We are supposed to call incidentes of this type general sicknesses. In twenty or thirty years, when we have a database about Chernobyl, we’ll begin connecting these to ionized radiation. But for the moment science doesn’t know enough about it.” But I can’t wait twenty or thirty years. I wanted to sue them. Sue the government. They called me crazy, laughed at me, like, There were children like these in ancient Greece, too. One bureaucrat yelled at me: “You want Chernobyl privileges! Chernobyl victim funds!” How I didn’t lose consciousness in his office, I’ll never know.

There was one thing they didn’t understand—didn’t want to understand—I needed to know that it wasn’t our fault. It wasn’t our love. [Breaks down. Cries.] This girl is growing up—she’s still a girl—I don’t want you to print our name—even our neighbors—even other people on our floor don’t know. I’ll put a dress on her, and a handkerchief, and they say, “Your Katya is so pretty.” Meanwhile I give pregnant women the strangest looks. I don’t look at them, I kind of glance at them real quick. I have all these mixed feelings: surprise and horror, jealousy and joy, even this feeling of vengeance. One time I caught myself thinking that I look the same way at the neighbors’ pregnant dog—at the bird in its nest . . .

My girl . . .

Larisa Z., mother